ISAAC AAC Awareness Month
 
 


2008 MANY STORIES ONE VOICE ONLINE COLLECTION


Zach Joubert, Age 37, South Africa


Click HERE to download the full story in Microsoft Word format. 
 

 

I’m suffering from Frederick’s Ataxia, I’ve started using AAC systems in 1994. I’m currently using a PF1 by PRC. My story says it all.

 

Adventure on Oppikoppi.

 

My name is Zach Joubert. I’m the person that has been supposedly forgotten during a Rock & Roll music festival, namely Oppikoppi, in a bar. It was held in the bushveld near Northam, in the Northern Province of South Africa in August 2005 over the long weekend.

 

I have Friedrich’s ataxia, which causes difficulty in using my muscles throughout my body. My voice and balance is strongly affected by it, but it has not deterred me from living my life to its utmost.

 

I’d had my birthday on the 31 July. About 2 weeks before I had my birthday, I’d send out during a pal’s friendly get-together an invitation to the guests to come and celebrate my birthday at the forthcoming Oppikoppi music festival, that was being held the 5th to the 9th August. I had been there 3 times before. I had organized with 2 other friends for my stay and lift to the venue. The 1st of August my friends phoned me and told me that their car had broken down but they would get a lift with someone else. I just have to organize my own transport to and from the music venue. I had to contact them on arrival so that they would take me to their camping-spot. I’d managed to get transport from a taxi company by searching on the Internet. On the 4th of August, my friends and I met at another place and planned the Oppikoppi outing.

 

The 5th of August finally arrived. I drove around like a formula 1 racing driver on my electric wheelchair to get my things finished for the planned long-weekend. At about 17h40 another buddy arrived at my place to help me pack my things and to drop me off at the taxi’s meeting place. My gear consisted of a tent, clothes put in a nylon back, manual wheelchair and food in a cool bag. I arrived there at 18h20 and climbed aboard with 7 strangers in a combi (van) with a trailer. Everything was loaded onto the trailer. At about 18h30 we were on our way to Oppikoppi.

 

During the trip I tried to get to know my fellow passengers. It was almost impossible because I have left my Pathfinder at home for security reasons. I had taken along a qwerty alphabet board, a cell phone and a notebook with a pen to try and communicate. To make things worse, I was dead tired, had no light as darkness descended on us and the road surface was terrible. Eventually I learned that the 2 passengers, the driver and co-driver were all engaged. There were 3 girls from overseas in front of me and beside me there were a guy with his girlfriend from Cape Town.

 

After a bumpy ride of about 2 and a half hours, we arrived at our venue, The Oppikoppi music festival. At the entrance our festival and camping tickets were taken and each one of us were marked by clamping a black piece of cloth around one arm. Everywhere inside the camping site, there were thousands of people talking, braaiing (barbeque) and enjoying themselves. There were hundreds of fires flickering between the endless oases of thorn trees in the campsite of about 25 square kilometers. We decided to be dropped at the nearest empty camping spot to the entrance to the music sites. We’ve found it on the corner of Silang Malabe road and Oom Piet Duik road. As we were unloading our suitcases, my wheelchair and camping gear from the trailer, I asked someone to phone my friends and tell them where they should look for me to take me to their camping spot. The person tried to contact them via my cell phone, but only got that the number he dialed was busy and if he would leave a message. The person then eventually did leave a message and departed. The departure time and place, back to Pretoria, were given to each passenger by the lift organizers. The lift organizers together with the combi and its trailer disappeared into the night.  The passengers then got to put up their tents, while I’d settled nearby in my wheelchair, waiting for my friends to come and pick me up. I tried to entertain myself by looking at the different tents and watching what the other campers were doing. I was eventually asked by inquiring campers if I’m helped? I tried answering their questions with my alphabet board and stored messages on my cell phone. Most of the campers thought I’m deaf and tried spelling what they wanted to know on my alphabet board.  I’d put the following text message onto my cell phone: “I can hear you, just can’t speak clearly.” Another hour and a half passed with me waiting in vain for my friends to pick me up, so I tried phoning them again. I could only get their cell phones voicemails. For the next half hour I could only to get their voicemails. I had to eventually switch over to the sms function as my pre-paid airtime was exhausted.

 

After waiting for another half hour, I smsed a mutual friend, and explained the situation to him and asked him to try and contact them. A quarter of an hour later, I’d received the mutual friend’s sms that he had also gotten only their voicemails. He told me to put up my tent on the spot and that he would try to made contact with them.

 

With the help of to 2 strangers, I began putting up my tent. Halfway through the process, we discovered that there were just 2 tent poles and not 3. It had been realized that 1 of the tent poles had gotten left behind at my home in Pretoria by me. Luckily we’ve managed to put the tent up despite the missing tent pole. I was then put inside the tent together with my belongings. The 2 strangers then disappeared in the dusty road on their way to the stages entrance. Disappointed, cold, tired and in despair I’d waited for any sign of my lost friends. At about 01h00, I had decided to try and sleep.

 

Every few minutes thereafter, I had been woken by the lights of a passing car or some campers with flashlights. At the 8 music stages, every speaker was put to its fullest to try and attract the biggest crowd. You could only imagine the ghoulish sounds evolving from the stages and rolling through the campsite. A deep sleep overcame me at about 03h30. At 05h45, I was awakened by the morning cold. After gathering my thoughts, trying to puzzle out the wellbeing of my friends that should have come to pick me up but didn’t, I’d decided to go outside armed with my alphabet board, cell phone and pen & paper around the neck. Outside the day was breaking.

 

As ‘lady luck’ would have had it, I’d discovered that my tents outside was put wrongly with the outside entrance at my back with the insides entrance in front of me. When I’d eventually managed to crawl out, I received an even greater shock. My tent was standing halfway in the farm road. I couldn’t believe my luck as during the short time, I hadn’t been run over by the traffic.

 

2 nearby campers, realized my helplessness in shifting my tent on my own to a safer place, helped and offered to make place for it near theirs about 10 meters away. I’d accepted their offer and my tent was moved. I’d smsed my tents new position to my missing friends. The mutual friend also had received my tents new position. The mutual friend, whom had unsuccessfully tried to get hold of our missing friends, eventually got hold of the campsites security and told them of my dilemma. They had to come and hear if everything was okay with me. At 10h00 the campsites security come and asked me if I’m okay and offered me a lift to the medical tent. As I had a full bladder and the campsites toilets were impossible for me to use on my own, I’d accepted their offer. After making arrangements with nearby campers that I’m at the medical tent should someone come looking for me, I was put onto their bakkie and off we went.

 

Once dropped off by the medical tent, I’d hurried off to the nearest toilet. The medical tent was very busy. Most people had or a hangover, a thorn in the flesh or ailment problem. As can be expected was the medical personnel were afraid of the situation into which they found themselves while trying to communicate with me. After a while they started understanding my way of communication. Some of the festivals people came to take my personal info so that it could be broadcasted from the music stages that my friends should look for me at the medical tent. I’d waited patiently, helping the medical personnel where I can, till 13h45, but my missing friends did not show up. 

 

I then decided to go and watch rugby with some of the medical personnel. If there is something I like, its rugby. The game was shown on a big screen at the beer tent next to the medical tent. South Africa was playing against New-Zeeland at Newlands in Cape Town and had won the game, 22 – 16. After the game, I’d started looking for my tent with belongings that I’d left that morning with some campers. At first I couldn’t find my tent and belongings. After enquiring for it at a few campers and being pushed or pushing a wheelchair by myself on the uneven dirt roads for about 3 kilometres, I’d heard that someone had left a tent and backpack at the medical tent. It was my tent and backpack that were left by the medical tent. On my way back to the medical tent, a young girl gave me a handful of coins because I must have looked like a beggar.

 

At the medical tent, an awful surprise awaited me. A newspaper reporter had heard about the dilemma. Reluctantly I’d agreed to an interview. The reporter had asked me only two questions namely what’s the matter with me and where do I come from. I answered the questions by using my alpha board. The reporter then disappeared.

 

Tired, frustrated and disappointed at the outturn of events was what I’d felt. I’d asked for permission to sleep in the medical tent which I did get. Just like the night before I couldn’t sleep immediately.

 

The Sunday morning, I’d stayed inside my sleeping bag till 07h30. At 08h45 I’d decided to phone an old friend of mine, George van Heerden. I’d got hold of him and explaining the situation to him. We then decided that it was best that he’d come from Centurion and take me back home to Pretoria. Centurion is just outside of Pretoria. About 14h00, he arrived together with a other friend, Quinton. Sadly I’d said goodbye to my new friends before taking the road back. We were driving in the wrong direction but eventually had gotten our direction sorted out and back to Pretoria we went. I’d arrived back home dirty and worrying about my missing friends.

 

That Monday morning, I’d almost had a heart attack. On every lamp pole in Lynnwood highway, a photo of me trying to communicate at Oppikoppi was portrayed with the following headline ‘Person in wheelchair forgotten in bar’.

 

On the funny side now I could brag that I’d had been put on the ‘Beeld’ frontpage together with Riaan Oberholtzer (SARVU Rugbyboss) and Jake White (Rugby trainer).

 

My missing Oppikoppi friends had phoned me the 9th of August. They’d been experiencing sim card problems at the Oppikoppi music festival. I want to thank them for the expierences gained at Oppikoppi. You can’t buy that expierence from anywhere else. I would love to go again. Oppikoppi is sure not meant for the faint hearted!

 

Oppikoppi aventurer

Zach Joubert